H.R. 4709 · 119th Congress

Newborn Screening Saves Lives Reauthorization Act of 2025

Introduced on Jul 23, 2025 by Kelly Morrison (D-MN-3). 7 cosponsors, 3 of them from another party. Latest action (Sep 10, 2025): Forwarded by Subcommittee to Full Committee by Voice Vote.

Stage
Introduced
Introduced
Jul 23, 2025
Cosponsors
7
3 from the other party
Policy area
Health
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Progress

The furthest stage the measure reached. Simple and concurrent resolutions do not go to the President.

  1. Introduced
  2. 2Reported by committee
  3. 3Passed one chamber
  4. 4Passed both chambers
  5. 5Sent to the President
  6. 6Became law

Official title

To amend the Public Health Service Act to reauthorize certain programs under part A of title XI of such Act relating to genetic diseases, and for other purposes.

Subjects

  • Advisory bodies
  • Child health
  • Data collection, sharing, protection
  • Drug safety, medical device, and laboratory regulation
  • Genetics
  • Government information and archives
  • Hereditary and development disorders
  • Medical research
  • Medical tests and diagnostic methods
  • Performance measurement
  • Research administration and funding

Summary

By the Congressional Research Service (Introduced in House, Jul 23, 2025). Public domain.

Newborn Screening Saves Lives Reauthorization Act of 2025

This bill reauthorizes through FY2030 and revises several programs and activities relating to newborn screening for certain conditions and diseases.

Among its changes, the bill reauthorizes and makes mandatory

  • the Hunter Kelly Research Program at the National Institutes of Health, and
  • national surveillance activities conducted by the Centers for Disease Control and Prevention.

The bill also provides statutory authority for current regulations that exempt federally funded research on non-identified newborn blood spots (i.e., residual blood samples used to screen for serious conditions) from regulations that govern research on human subjects.

Sponsor and cosponsors

Cosponsors by party as of the day they signed on. Original cosponsors signed on the day of introduction.

Kelly MorrisonD-MN-3Sponsor

Democrats · 4

Republicans · 3

Roll calls

Recorded votes on the measure. Most measures move by voice vote or unanimous consent, which record no individual positions.

No recorded roll call on this measure: it moved by voice vote or unanimous consent, or has not reached the floor.

History

Every action as published, oldest first. Roll calls link to how each member voted.

  1. Jul 23, 2025Introduced in House
  2. Jul 23, 2025Introduced in House
  3. Jul 23, 2025 · HouseReferred to the House Committee on Energy and Commerce.
  4. Sep 10, 2025 · HouseReferred to the Subcommittee on Health.
  5. Sep 10, 2025 · HouseSubcommittee Consideration and Mark-up Session Held
  6. Sep 10, 2025 · HouseForwarded by Subcommittee to Full Committee by Voice Vote.

Committees

Committees and subcommittees the measure was referred to.

Agencies in its committees' jurisdiction

Analisa's mapping of committee jurisdiction to federal agencies; the bill may touch others, or none of these.

Who lobbied on it

Organizations whose lobbying reports (LD-2) name this measure. Spending is what they reported for those quarters on all issues, not on this measure alone.

  1. American Academy of Pediatrics4 reports
    $1.5M reported (all issues)Federal contractor: AMERICAN ACADEMY OF PEDIATRICS$442.6K in contracts, FY2026AI match · 100%
  2. American College of Medical Genetics4 reports
    $80K reported (all issues)
  3. EVERYLIFE FOUNDATION FOR RARE DISEASES4 reports
    $190K reported (all issues)
  4. GeneDx, LLC4 reports
    $320K reported (all issues)Federal contractor: GENEDX, LLCAI match · 98%
  5. National Association of Pediatric Nurse Practitioners4 reports
    $96K reported (all issues)
  6. Travere Therapeutics4 reports
    $710K reported (all issues)Federal contractor: TRAVERE THERAPEUTICS, INC.$323.9K in contracts, FY2026AI match · 100%
  7. REVVITY INC.3 reports
    $105K reported (all issues)Federal contractor: REVVITY SIGNALS SOFTWARE, INC.$80.5K in contracts, FY2026AI match · 100%
  8. STEALTH BIOTHERAPEUTICS INC.2 reports
    $240K reported (all issues)
  9. The Nemours Foundation - a Florida not-for-profit Corporation2 reports
    $290K reported (all issues)
  10. Association for Diagnostics & Laboratory Medicine (formerly AACC)1 report
    $40K reported (all issues)
  11. Beren Therapeutics1 report
  12. Muscular Dystrophy Association, Inc.1 report
    $50K reported (all issues)Federal contractor: MUSCULAR DYSTROPHY ASSOCIATION INC$315K in contracts, FY2026AI match · 100%

Reports filed in 2025, 2026.

Sources and method

Every figure on this page traces to these records.

  • Bill status: bills and resolutions, sponsors, actions, subjects and CRS summaries (U.S. Government Publishing Office (GovInfo), from Congress.gov (Library of Congress))GovInfo Bill Status bulk data (Congress.gov; summaries by the Congressional Research Service) · data current to Oct 6, 2026 · loaded Oct 6, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
  • Members of Congress, their terms, committees and identifiers (The @unitedstates project (from the Biographical Directory of the U.S. Congress, the House and the Senate))unitedstates/congress-legislators: legislators, committees and current committee membership · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: CC0 1.0 (public domain dedication)
  • House roll-call votes (Office of the Clerk, U.S. House of Representatives)Office of the Clerk, U.S. House of Representatives, roll-call vote records · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
  • Senate roll-call votes and DW-NOMINATE scores (Voteview (UCLA Department of Political Science))Lewis, Jeffrey B., Keith Poole, Howard Rosenthal, Adam Boche, Aaron Rudkin, and Luke Sonnet (2026). Voteview: Congressional Roll-Call Votes Database. https://voteview.com/ · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: Free to use with the required citation
  • Lobbying disclosures (LD-1 registrations, LD-2 quarterly reports, LD-203 contribution reports) (Clerk of the U.S. House of Representatives)Clerk of the House, Lobbying Disclosure Act filings (organizations only; lobbyists' names are not loaded) · data current to Oct 6, 2026 · loaded Oct 6, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
  • Positions are shown only where a roll call recorded them; voice votes and unanimous consent record none.
  • Money and votes are shown side by side; neither explains the other.