S. 1862 · 119th Congress
ORPHAN Cures Act
Introduced on May 22, 2025 by John Barrasso (R-WY). One cosponsor. Latest action (May 22, 2025): Read twice and referred to the Committee on Finance. (text: CR S3119)
- Stage
- Introduced
- Introduced
- May 22, 2025
- Cosponsors
- 1
- 1 from the other party
- Policy area
- Health
Progress
The furthest stage the measure reached. Simple and concurrent resolutions do not go to the President.
- Introduced
- 2Reported by committee
- 3Passed one chamber
- 4Passed both chambers
- 5Sent to the President
- 6Became law
Official title
A bill to amend title XI of the Social Security Act to expand and clarify the exclusion for orphan drugs under the Drug Price Negotiation Program.
Summary
The Congressional Research Service has not summarized this measure yet.
Sponsor and cosponsors
Cosponsors by party as of the day they signed on. Original cosponsors signed on the day of introduction.
Democrats · 1
- Martin HeinrichD-NMoriginal
Roll calls
Recorded votes on the measure. Most measures move by voice vote or unanimous consent, which record no individual positions.
No recorded roll call on this measure: it moved by voice vote or unanimous consent, or has not reached the floor.
History
Every action as published, oldest first. Roll calls link to how each member voted.
- May 22, 2025Introduced in Senate
- May 22, 2025 · SenateRead twice and referred to the Committee on Finance. (text: CR S3119)
Committees
Committees and subcommittees the measure was referred to.
Agencies in its committees' jurisdiction
Analisa's mapping of committee jurisdiction to federal agencies; the bill may touch others, or none of these.
Who lobbied on it
Organizations whose lobbying reports (LD-2) name this measure. Spending is what they reported for those quarters on all issues, not on this measure alone.
- ALNYLAM PHARMACEUTICALS, INC.13 reports
- INCYTE CORPORATION10 reports$2.6M reported (all issues)
- EMD SERONO, INC.9 reports$3.8M reported (all issues)
- IONIS PHARMACEUTICALS, INC.8 reports$370K reported (all issues)
- ACADIA PHARMACEUTICALS5 reports$3.1M reported (all issues)
- AstraZeneca Pharmaceuticals LP5 reports$7.8M reported (all issues)Federal contractor: ASTRAZENECA PHARMACEUTICALS LP$500 in contracts, FY2026AI match · 100%
- JOHNSON & JOHNSON SERVICES, INC.5 reports
- Patients Rising Now5 reports$30K reported (all issues)
- Travere Therapeutics5 reports$910K reported (all issues)Federal contractor: TRAVERE THERAPEUTICS, INC.$323.9K in contracts, FY2026AI match · 100%
- BeOne Medicines USA, Inc. (fka BeiGene USA, Inc.)4 reports$280K reported (all issues)
- LUNDBECK LLC4 reports
- MERCK & CO., INC.4 reports
- BOEHRINGER INGELHEIM USA CORPORATION3 reports$2.5M reported (all issues)Federal contractor: BOEHRINGER INGELHEIM ANIMAL HEALTH USA INC$3.5M in contracts, FY2026AI match · 99%
- JAZZ PHARMACEUTICALS, INC.3 reports
- UCB, INC.3 reports$750K reported (all issues)
- AMGEN INC.2 reportsFederal contractor: AMGEN INC.AI match · 99%
- Astellas Pharma US, Inc.2 reportsFederal contractor: ASTELLAS PHARMA US, INC.AI match · 100%
- CHIESI USA, INC.2 reports
- Daiichi Sankyo, Inc.2 reports
- RARE DISEASE COMPANY COALITION2 reports$160K reported (all issues)
- STEALTH BIOTHERAPEUTICS INC.2 reports$220K reported (all issues)
- AARP1 report$5.1M reported (all issues)
- BIOMARIN PHARMACEUTICAL INC.1 report$270K reported (all issues)
- BIOTECHNOLOGY INNOVATION ORGANIZATION1 report$1.5M reported (all issues)
- BRISTOL-MYERS SQUIBB COMPANY1 report
- Genentech USA, Inc.1 report$50K reported (all issues)Federal contractor: GENENTECH USA, INC$939.6K in contracts, FY2026AI match · 100%
- HARMONY BIOSCIENCES, LLC1 report$150K reported (all issues)Federal contractor: HARMONY BIOSCIENCES LLC$614.4K in contracts, FY2026AI match · 100%
- Healthcare Leadership Council1 report$180K reported (all issues)
- MODERNA, INC.1 reportFederal contractor: MODERNA US, INC.AI match · 99%
- Public Citizen1 report$99.8K reported (all issues)
- VERTEX PHARMACEUTICALS INCORPORATED1 report
Reports filed in 2025, 2026.
Sources and method
Every figure on this page traces to these records.
- Bill status: bills and resolutions, sponsors, actions, subjects and CRS summaries (U.S. Government Publishing Office (GovInfo), from Congress.gov (Library of Congress))GovInfo Bill Status bulk data (Congress.gov; summaries by the Congressional Research Service) · data current to Oct 7, 2026 · loaded Oct 7, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
- Members of Congress, their terms, committees and identifiers (The @unitedstates project (from the Biographical Directory of the U.S. Congress, the House and the Senate))unitedstates/congress-legislators: legislators, committees and current committee membership · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: CC0 1.0 (public domain dedication)
- House roll-call votes (Office of the Clerk, U.S. House of Representatives)Office of the Clerk, U.S. House of Representatives, roll-call vote records · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
- Senate roll-call votes and DW-NOMINATE scores (Voteview (UCLA Department of Political Science))Lewis, Jeffrey B., Keith Poole, Howard Rosenthal, Adam Boche, Aaron Rudkin, and Luke Sonnet (2026). Voteview: Congressional Roll-Call Votes Database. https://voteview.com/ · data current to Oct 3, 2026 · loaded Oct 3, 2026 · license: Free to use with the required citation
- Lobbying disclosures (LD-1 registrations, LD-2 quarterly reports, LD-203 contribution reports) (Clerk of the U.S. House of Representatives)Clerk of the House, Lobbying Disclosure Act filings (organizations only; lobbyists' names are not loaded) · data current to Oct 7, 2026 · loaded Oct 7, 2026 · license: Public domain (U.S. Government work, 17 U.S.C. § 105)
- Positions are shown only where a roll call recorded them; voice votes and unanimous consent record none.
- Money and votes are shown side by side; neither explains the other.