Federal contractor · DANBURY, CT

THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC

No contract obligations recorded for THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC in FY2026. Since FY2019: $1.5M.

Obligations · FY2026
$0
New awards
0
Sole-source
—
Single offer
—
UEI
PCPAHHLS8VB6
Other than small businessNonprofit
Open in the contracts explorerRelationship graph

Spending by fiscal year

Obligations per federal fiscal year (October–September).

  1. 1.3MFY2019
  2. 0FY2020
  3. 0FY2021
  4. 170.5KFY2022
  5. 0FY2023
  6. 0FY2024

Top buying agencies

Obligations in FY2026.

No contract obligations recorded for THE NATIONAL ORGANIZATION FOR RARE DISORDERS INC in FY2026.

What was bought · Where the work was performed

Obligations in FY2026.

What was bought

Where the work was performed

Integrity signals

Shares of the year's obligations, next to the country's.

Subawards

Matched by Unique Entity ID: the first-tier subawards this organization reported as a prime recipient, and those primes reported paying it.

As a prime: who it pays · FY2026

No subawards reported as a prime in FY2026.

As a sub-recipient: who pays it · FY2026

  • Sub-grants: $1.1M (1 subaward)

1 prime

  1. THE CRITICAL PATH INSTITUTE$1.1M100%
    TUCSON, AZ · 1 subaward

By fiscal year

  • FY2021: $0 paid out · $1.7M received
  • FY2022: $0 paid out · $1.7M received
  • FY2023: $0 paid out · $3.7M received
  • FY2024: $0 paid out · $1.3M received
  • FY2026: $0 paid out · $1.1M received

Primes report first-tier subawards of $30,000 or more themselves, and many go unreported (GAO-24-106214). Reporting moved from FSRS to SAM.gov in March 2025 and fewer sub-contracts have been reported since. Amounts are what primes reported; they are never added to prime award totals.

Source: Subawards (first-tier sub-contracts and sub-grants reported under FFATA) (U.S. Department of the Treasury, USAspending.gov (reports filed in SAM.gov, formerly FSRS)), data current to Oct 10, 2026, loaded Oct 10, 2026 · Subawards loaded from FY2021.

Teaming partners

Companies this company reported paying, primes that reported paying it, from FFATA subaward reports.

Companies it pays

No subawards reported to other companies.

Primes that pay it

2 companies · $9.4M reported

  1. THE CRITICAL PATH INSTITUTE$9.2M
    TUCSON, AZ · 6 subawards
  2. NORTHWESTERN UNIVERSITY$277.7K
    EVANSTON, IL · 4 subawards

Primes report first-tier subawards of $30,000 or more themselves, and many go unreported (GAO-24-106214). Reporting moved from FSRS to SAM.gov in March 2025 and fewer sub-contracts have been reported since. Amounts are what primes reported; they are never added to prime award totals.

Source: Subawards (first-tier sub-contracts and sub-grants reported under FFATA) (U.S. Department of the Treasury, USAspending.gov (reports filed in SAM.gov, formerly FSRS)), data current to Oct 10, 2026, loaded Oct 10, 2026 · Subawards loaded from 2021.

Lobbying and PAC activity

Organizations in House lobbying disclosures and FEC records whose names an AI judgment matched to this company. Those records carry no identifier shared with contracts, so every match is by name.

Matched organizations

  • National Organization for Rare Disorders, Inc. (NORD)AI match · 100%
  • National Organization of Rare Disorders, IncAI match · 99%
Lobbying · 2025
$200K
7 reports
Lobbying · 2023–2026
$710K
$710K in its own reports

Lobbying by year

  1. 2023$140K
    4 reports
  2. 2024$240K
    4 reports
  3. 2025$200K
    7 reports
  4. 2026$130K
    4 reports

Top issues

  1. Health issues19 reports
  2. Medicare and Medicaid19 reports
  3. Pharmacy19 reports
  4. Budget and appropriations9 reports

Who was contacted

  1. U.S. HOUSE OF REPRESENTATIVES19 reports
  2. U.S. SENATE19 reports
  3. Centers For Medicare and Medicaid Services (CMS)13 reports
  4. Food & Drug Administration (FDA)13 reports
  5. Health & Human Services - Dept of (HHS)13 reports
  6. Natl Institutes of Health (NIH)8 reports
  7. Centers For Disease Control & Prevention (CDC)5 reports
  8. Natl Institute of Standards & Technology (NIST)1 reports

Houses of Congress and federal agencies the reports list as contacted (a report names every one for all its issues).

Lobbying firms hired

  1. James P. Keese$130K
    5 reports

Registrants who are individuals are counted, not named.

Lobbying amounts are the filers' own good-faith estimates on quarterly LD-2 reports (the law asks for amounts rounded to $10,000; under $5,000 need not be itemized), latest amendment only. When an organization files its own report, it replaces what outside firms report for it that quarter. Matches are by name. Lobbying and political giving are legal and public: they show engagement with government, not influence over any award. Correlation is not influence: these organizations' lobbying and their contracts are shown side by side, and nothing here implies either affected the other.

Source: Lobbying disclosures (LD-1 registrations, LD-2 quarterly reports, LD-203 contribution reports) (Clerk of the U.S. House of Representatives), data current to Oct 10, 2026, loaded Oct 10, 2026 · 2023–2026.

Source: Committees, candidates and committee contributions to candidates (Federal Election Commission), data current to Oct 10, 2026, loaded Oct 10, 2026 · 2026, 2024, 2022.

Matches: Analisa AI name judgments (entity-match@1), updated Oct 5, 2026.

Source: Federal contract transactions (Federal Procurement Data System) (U.S. Department of the Treasury, USAspending.gov), data current to Oct 10, 2026, loaded Oct 10, 2026.